fbpx
Breast Cancer Is The Time To Gather Your Tribe

Breast Cancer Is The Time To Gather Your Tribe

Breast cancer is challenging enough, there’s no need to do it alone. No one needs to be that strong.

Have you got a tribe? A girl posse if you will? I do and I’m the luckiest girl in the world with the love they have gifted me during my breast cancer chapter. Without them, I know I would not have made it. It’s a strong statement, but that’s my raw truth.

I know I needed them when I was initially diagnosed. I needed them when I had multiple surgeries. I reached out in tears when I received my pathology news. My tribe caught me before I hit the floor and held me until I could stand on my own again. 

My tribe triple dog dared me to dress up and make chemotherapy my bitch (which I totally did!). And together we have a big enough collection of titty jokes for me to do stand up comedy.

MY tribe was and continues to be, a sacred circle of trust, love and laughter, and unconditional love. It’s a space that awakened my true warrior spirit. Women are incredibly powerful in their own power, but when they gather, something magical happens when they combine their energies

Reaching out for comfort and support is vital when you’re feeling too many feels during a personal crisis such as breast cancer. This is a time when overwhelm can set in, and that bullshit gets in the way of connecting to your intuition. Knowing what you innately need (in terms of deciding your treatment), when you need it, and choosing who will provide that all require you to have your wits intact, not shattered in pieces on the floor. 

Without a connection to your gut instinct, you may struggle to make sense of the diagnosis, or clearly decide with your full heart knowing of your treatment. Furthermore, your recuperation to treatment may be hindered as you hang onto to unwanted or unresolved emotional stress.

Never risk blindly stepping along a pathway navigating a crisis, and be solely rely on the advice by an external party. By all means, gather your medical teams (and there will be multiple parties), and listen to their recommended actions and reasons behind that. But make your decisions always being true to your gut instinct. 

I’ll happily talk to anyone who wants to about my breast cancer experience. I strongly feel that open dialogue is critical to demystify the array of fears associated with the disease and it’s treatment. I know the conversations I had with my posse were emotionally charged, as we dissected scientific-based facts and how that related to my cancer now and my long term prognosis with or without treatment. Some of these conversations even prompted some of my friends to finally go and have their initial screening mammograms.

I recently watched a webcast presentation by Breast Cancer Network Australia which included very wise advice by Breast Cancer Oncology surgeon Miss Carolyn Baker:

  • every person’s breast cancer experience is unique and different;
  • be careful of the avalanche of war stories of other people’s experiences
  • seek an individualised care plan
  • understand the pathology of your cancer which will set the tone of your treatment — grade, size, receptors, and nodes must be in your discussions
  • age, breast size, general fitness all determine the best mode of care by your team (multiple modalities incorporating various treatments)

Every breast cancer experience, in my opinion, is an enormous opportunity to learn and refine so much about yourself. It’s also a gift to solidify the bonds of friendship and your tribe. Whilst there are proven treatment protocols for various stages of your cancer, with the loving support from my tribe, I decided to drop the cancer fight and embrace it — I made my experience my own. 

I am a firm believer, your cancer is not your journey. It is an experience. There is no way I will allow cancer to dictate how I live my life. If detected early enough, the survival rates are exceptional with varieties of treatment options available. 

Having a posse to hold space and listen whilst you verbally purge is exactly like going to group therapy. Do you feel renewed when you gather? You know what I mean – do you laugh so hard that your ribs and jaw ache as you talk to each other?

Can you share your deepest secrets and still be supported? Do you all take turns sharing your fears and worries, and talking out options and solutions?

Do you gather often to share yourselves and get stuff off your chest? Ahem, pun not intended but worthy of a snoopy snigger nonetheless.

For me having a posse during this shit festival called breast cancer was soul-saving. 

My posse collectively lifted me up and held me high to the rising sun every time I felt low. Energetic medicine is miraculous like that. And even if you don’t believe in it just think of someone you love who isn’t home — does your love for them change? No. Do they feel your love regardless of where they are? Yes.

My posse hugged me (even remotely), made me laugh and cried alongside of me when I needed it the most. I never felt alone. We did this together. I am endlessly grateful for their constant presence.

I was never judged, only loved unconditionally. This is the gift of gathering your tribe. When women come together we form an unspoken union, a sacred space if you will.

I pulled together those people in my life that I could trust unconditionally, who would honour my secrets, hold me up, not gossip and offer me, love, in their own unique way. 

The reward for that trust I have been gifted a space so sacred that I could enable a self-healing so powerful that I could reinvent myself.

Here are my tips for when to gather your tribe! 

Allow yourself to be vulnerable.

A cancer diagnosis is a button pusher. No doubt about it, this news is a life changer for you as the patient and can induce terror in those around you. Everything you thought life was going to be is destroyed at that moment, at best it is put on hold. Expectations of how life was going to be are decimated.

To deal with the shock of diagnosis you have allowed yourself to be vulnerable. Allow yourself to feel all the feels, at your pace and in your way. Don’t hold anything in. 

Allow yourself to ask for help. And make this time about your healing.

Accept there may be gossip

It’s human nature that people will talk. They’ll talk behind your back. They’ll talk about your diagnosis, your treatment, even your hair loss!

Sometimes people talk about your stuff behind your back because they are afraid to talk to you. They are afraid for you. They are afraid of getting cancer themselves. 

Cancer is like cooties, it’s not catching but people don’t want to be associated with bald eagles! My rule of thumb is what people say about me is none of my business. They are entitled to opinions, and to vent or share their concerns.

My inner circle of friends speak to my face. We talk about everything and anything. We take it in turns going around the table when we do talk. That’s what friendship is all about. 

Limit your communications

I used a private messenger chat forum via Facebook to communicate with my tribe. It meant I only had to provide an update once, rather than repeat bad news over and over.

My tribe included persons of trust in all aspects of my life. This way if I was out anywhere at an event or activity, I knew there’d be a posse member somewhere who I could lean on to simply walk, or run interference from nosy bastards.

Share info from your specialist 

Your medical team are likely to throw a tonne of information at you. Share this literature and links, like that at BCNA, with your posse, so that you are all on the same knowledge page. It does make for great open conversation where you can openly debate science, facts and your emotional response.

Your job is to digest the knowledge you have cancer. Your friends have the job of holding space whilst you do that.

Have a communal calendar 

Let your posse know when the big appointments are coming up. That way you have an entire tribe manifesting abundance in your favour. Additionally, you create the potential for offers from your tribe to give you lifts, cook meals, babysit kids, clean, and even shop for you.

Accept help when it is offered

After my mastectomy-reconstruction surgery, I had 145cm of suture line healing. It was difficult to stand for weeks. My whole body was battered and new. It was difficult to cook and clean. So when friends offered a meal to mop I begrudgingly accepted. 

One of my friends said this to me. “Honey you are always the first to offer, please let me love you by cooking a meal or doing this one little thing. I can’t do anything else and feel helpless so let me do this little thing“.

I couldn’t argue with that and had to stick my ego in the closet! Believe it or not, your tribe make offers to help you because this is their way of showing you they love you!

Have firm boundaries 

I was very strategic with who I invited into the messenger group and shared details with. There were representatives from all aspects of my life. These friends all knew they were in a circle of trust, and respected the confidentiality I had shared with them.

These people were able to share vital news within my networks on my behalf. My tribe fielded questions and nipped gossip in the bud. They were protective and loving, and this created space for me to focus on my healing. I was so blessed to be held in such a special space of loving support.

Know Who To Tell & Trust?

There is nothing worse than having to discuss and re-tell your cancer story over and over again. There’s only a number of critical people in your life that need to know the news immediately. Your partner and your kids. That’s it. You may choose to only tell this group and leave everyone else guessing.

Final Words

A breast cancer diagnosis is terrifying, and not a chapter of your life that needs or should be done alone. No one needs to be that strong. Allowing yourself to be vulnerable, share the emotional load, and be supported strengthens your relationships.

Allowing yourself to be part of a tribe means you get to surround yourself with love and concentrate on healing. My wish for you is that you have a powerful posse too who can conjure a sacred circle if you are ever in need. 

My Tribal Prayer
May my tribe always shine light upon you to find your own light.
May you never feel alone and always supported.
May your posse be filled with abundant love xxx

Resources & References:

Breast Cancer Network Australia Webcast –

Just diagnosed: what’s next?

Karen Humphries, Change Chick, Change Facilitator, Kinesiology, Wellness Coach, Australian Bush Flower Essences, LEAP Facilitator, Trauma, Public Speaker, Cancer Ambassador, Blooming From Within, Traralgon, Victoria, Gippsland

About Karen

Change Facilitator

Karen Humphries is a Clinical Hypnotherapist, Resource Therapist, Kinesiology Practitioner, Wellness & Business Coach, LEAP, NES + TBM Practitioner, Intuitive Meditation Facilitator, and published author.

Karen is a self-confessed laughaholic who loves being of service to the world with her humorous and positive approach to life, encouraging people to ‘choose to change and bloom from within.’ 

Karen sees the value in bringinh her tribe together for all to flourish.

Why Asking “WHAT” Will Give You The Answers You Seek

Why Asking “WHAT” Will Give You The Answers You Seek

How to move forward in your life!

I’ve not met a single person on the planet yet who enjoys the thought of “sucking it up” or relishing the taste of a dog turd served up on a platter. That’s what a cancer diagnosis gifts you at the start of the experience.

I recognise that’s a little confrontational and button pushing, but it’s my truth. My breast cancer experience is also my reformed resilience, motivation, exposed fears, revitalised purpose and pursuit of my dreams. It’s been a gift on many levels. 

My raw has transformed into my ROAR!

A cancer diagnosis and recovery from surgery and/or treatment are significant. You find yourself asking a hell of a lot of questions, some of which are reasonable and some are fear-based. It’s very easy to quickly fall down a rabbit hole into a pity party.

After listening to Tasha Eurich’s Ted Talk “Increase your Self Awareness” I was left with two profound key points.

Why” questions trap us into continuing to look in the rearview mirror of our life.

A why question often denotes an emotional component to answer or highlight a reason or cause. In the case of cancer, why would one person be diagnosed over another? In some cases, like smoking or drinking, the why is simple and easy to identify. There is an inference that the person’s actions were the cause. 

A why question also denotes blame shame and guilt immediately to the inquisitor. It infers the action of the question asker to reflect on the reason of cause. In the case of cancer, as my oncologist states, it’s the luck of the draw.

In my experience and research, cancer is a little more than luck but still, no-fault should be drawn. Yet we self criticise, self punish and talk shit to ourselves when the going gets tough at the time of diagnosis! Other than making you feel worse and completely stuck, what is this serving you? You gain absolutely nothing.

I could talk about the involvement of epigenetics, diet and the management of chronic stress in one’s life — all of which contribute to cancer. There are likely to be the questions surrounding why me, but what if you were to consider what can I learn from this experience?

Does that one question stop you in your why tracks immediately? Did you find yourself pausing and taking a slow deep breath and calming a little?

Here’s the thing, if you’re a newly diagnosed patient none of those reasons you procured inside your head matter right now. Do they? Looking for a cause is continuing to look in the rearview mirror of your life. The diagnosis is done. It’s not in your control to go back and make changes. 

You can’t relive your life or get a do-over.

But YOU can make changes moving forward.

You’re not doing yourself any favours by mentally beating yourself up with all the analysis of the why. Excessive or ongoing thinking literally will drain your physical energy to maintain the mental stamina to power the brain and continue assessing what did or did not go right or wrong.

The answer to overcoming the stress of a cancer diagnosis (and it’s easier to implement than you think) is to ask yourself this one question. 

What is in my control right now?

Sit with that question and check in with your body. Is it still in a state of flight or fight? Or perhaps are you suddenly eager to explore new horizons? Is there a shift?

Asking the what question shifts your vision, motivation and drive for life forward. It changes the mindset into a solution-orientated field.

What to ask your medical team?

Understand your diagnosis

Understanding medical language at the best of times can get a person flummoxed. Learning about the intricacies of your cancer diagnosis takes time to digest all the various nuances associated with your personal case.

Understand what your pathology report is informing your specialist. Be sure to continue asking questions of your medical team until you are clear on what the diagnosis means, and their suggested treatment options based on your specific results. 

Understand your treatment options

Once you’ve got your head around your diagnosis, your medical team is a well-oiled machine which will likely guide you to some form of medical intervention. It’s vital to understand what various treatment options are available to you.

There will naturally be emotions associated with whatever treatment option you choose. A good practitioner provides you with advice for treatment, based on the statistical success of short and longer-term cure rates, and allow you to decide. It’s your body after all.

I was fortunate enough to have a world-class surgical team who participated in robust discussion about surgical and oncology treatment options. We discussed the pros and cons of everything in relation to my case history.

I also asked what the success rates of various procedures, tests and scans in general. I asked specifically each specialist what their individual performance statistics in relation to undertaking suggested treatment options. 

I discussed with my team the what were the potential failure rates, side effects and complications of what they suggested for my specific case. Let me very clear, I’m not a doomsayer with a negative outlook. I wanted to be proactive and understand what I could do to minimise negative outcomes that were in my control.

Understand the statistics of metastatic return

Upon my diagnosis, I learnt many things about my hormone-related cancer. I also had to think about two strategies before making any treatment decisions. These included what I needed to do to deal with cancer in the now and present, and in the medium term in order to minimise risks of metastatic return.

I found it vital that I understood what the statistical research evidence of possible recurrence of my exact cancer. I had numerous in-depth conversations with members of my medical team in relation to the little things that I could implement to manage pain, side effects, recovery, and ability to cope with everything in between.

Final Words

One of the most empowering things you can gift yourself is to ask yourself what questions? Asking yourself what can I learn from this experience?” literally reprogram your conscious brain into solution-seeking actions, rather than hosting a pity party.

Migrating through a cancer experience is tough. You get thrown so many lessons to learn about yourself. Asking what questions enables you to have some little bit of control of the many small things you can implement looking forward in your life.

About Karen

Change Facilitator

Karen Humphries is a Kinesiology Practitioner, Health & Business Coach, self-confessed laughaholic, and now Breast Cancer Advocate residing in Gippsland Victoria Australia. She loves being of service to the world with her humorous and positive approach to life, encouraging people to ‘choose to change and bloom from within.’ 

Healing Emotions Hurt More Than The Physical Wounds

Healing Emotions Hurt More Than The Physical Wounds

How to come to terms with the emotions of cancer

There are several reasons that cancer is associated with strong emotions. Cancer is an evocative word, which has traditionally referenced a deadly disease. Yet this doesn’t change the fact it is much harder to heal the emotions of cancer, more often than the physical wounds.

What I know to be true, is that upon diagnosis, there is an overwhelming sense of uncertainty thrown in your face. Your mortality is slapped down in front of you. There is an immediate fear of the future, fear of the unknown and fear of losing control.

I still vividly remember the Saturday morning my breast surgeon delivered the news of my pathology results. I had been able to get myself out of my hospital bed unassisted. It physically hurt like hell, but once I got comfy in the upright chair I was able to settle. The bed was for sick people, I didn’t perceive myself sick then. I was simply recovering from mammoth surgery.

When my surgeon sat at the end of my hospital bed, her face was serious and I knew something was wrong. You know that dread you feel watching a suspense movie? You experience that sensation when you know instinctively something is coming and can’t prepare for it?

She informed me that the results were significantly scarier, from what the original scanning and biopsy had shown. That was one of several days the floor disappeared and I felt like Alice falling down the hole.

I allowed myself to sit in the vulnerable

Hysterical tears don’t even come close to describing everything I felt and experienced that day. Hot mess doesn’t either. But I did both of those things and everything in between. Panic. Terror. Overthinking. Sadness. Worry. Anxiety. I experienced all of it, smothered by it in fact.

There was little resilience left after surgery earlier that week to do anything but cry. At that moment I felt completed defeated. In those conversation moments, my physical pain didn’t even rate. But I was gutted emotionally.

I can now reflect on that horrible day, understanding the true power of the fear of the unknown. It’s crippling and leaves you feeling nothing but raw, extremely vulnerable and very isolated.

The healing I’ve done on myself since has shown me that with patience and the loving support of friends and family, I have turned that raw into MY ROAR!

Even now, as broken as you may feel, you are still so strong. There’s something to be said for how you hold yourself together and keep moving, even though you feel like shattering. Don’t stop! This is your healing. It doesn’t have to be pretty or graceful. You just have to keep going. — Unknown

It did, in fact, take the promised eight weeks to recover from that mammoth reconstructive surgery. In hindsight that was the easy part. The hardest part was dealing with the resultant PTSD emotions that arose from a traumatic biopsy experience.

I had buried myself inside the physical recovery from surgery with very little time to deal with the magnitude of why I had surgery and my diagnosis in the first place.

The subsequent emotional feels that are incorporated deeply with diagnosis, and were often expressed as feelings like dismal failure and depression. Feelings of perpetual entrapment ensued, both physically and mentally.

 

Identifying dark places

That was a dark hole, which took some intense therapy to work through. With hindsight, I can see exposing the darkness of those negative emotions with external assistance, allowed me to openly explore all the feelings as the gift it was. Healing those emotions was so much more intense and way more challenging than healing from breast cancer surgery.

The talking therapy was the trick. I didn’t avoid it, I couldn’t, for that messy bitch of emotions slapped me every day. I didn’t process having cancer at the time of diagnosis. I was too busy being shuffled between appointments, having surgery and learning to walk again.

The emotional bastard bit me as I started chemo. The feels oozed out with my energy as the magic medicine flooded into my body. This was the time that my strong facade faded. And once again I was back to feeling overwhelmed and vulnerable.

 

The talking therapist supported me to gently explore the maze within and find myself again. The talking granted permission to the floodgates to open, which had been bolted tight. Those gates had held everything inside. It was everything inside that robbed me of my energy to recover physically. 

 

As soon as I wrote in my journal or purged with my therapist the cascading avalanche of all my stuff spilled out. There was a release. It was those moments of releasing the emotional that granted permission for the physical to relax and heal.

A friend shared the following quote with me during these darker days. The message was received. Be kind to self. Put self first. Do what it takes to heal. So I did.

I know you are hurting — really bad. I will not tell you to love yourself or smile, but to keep surviving, to get through this day, to eat whatever you want and not feel guilt. I will not tell you to stay in bed for a week, a month or a year if that is what your soul needs. I will remind you that you are still beautiful, even when you are dressed in all the grief. — Rune Lazuli

The emotional roller coaster of cancer is expected and very normal. It’s our human response to a stressful situation. The various things we feel are simply exaggerated because there is a societal perception that we are fighting for our lives.

 

I worked with a therapist

With the support of my therapist, I dug deeper into the abyss of the connective tissue within the wounds I now wore. Initially, those new lines caused much shame and embarrassment.

 

I openly explored my old wounds

I openly explored what my breasts had meant to me as an individual, a woman, a girl, an infant, and mother. I healed more mother wounds, and in doing so in poured an immense and deeply felt gratitude for my feminine.

 

I worked through the physical loss

I worked through what it meant to have nipples, and the grief I felt when I lost one. I was forced to process the new bumps to my milky white chest landscape.

 

I worked through the tears

I worked through months of crying every time I looked at my new chest landscape. The red scarring, the skin graft, the puckered skin and the limited range of motion made the emotions raw. It was this rawness that slowed the physical recovery. I was looking too closely at physical wounds, spending all my energy literally trying to fix them. Trying to control the uncontrollable.

From every wound, there is a scar, and every scar tells a story. A story that says “I survived” — Ft Craig Scott’’

What I’ve learnt is the depth that connective tissue stores emotional trauma. It stores a negative outlook. The tissue stores the false expectations we think we need. The stretch of the tissue holds onto the need to control and keeps you in a state of physical stuck and emotional disbelief. This equates to non-acceptance and inability to flow physically and mentally.

Now that I am embracing my role as a patient it’s getting easier to see those new landscape lines. I’ve researched tattoo designs, and the meaning of the symbol I’ve learnt that the ancient Amazon Warrior amputated her right breast in order to shoot her arrow strong and true.

The lesson learnt and accepted is that I now point true north — metaphorically, mentally, emotionally, physically and spiritually. 

Final words

 

If you find yourself, a friend or relative, on the cancer rollercoaster, and the likelihood is that someone in your life will be affected at some time, I offer you this. We are gifted challenges, not to endure but to experience. These challenges which arise enable us to explore more of self. These challenges gift us the chance to choose a mindset to focus on what is in our control and surrender to that which is not.

The more we can soften our emotional and mental perspective, the faster and more at peace our physical vessel will respond.

 

Karen Humphries, Change Chick, Change Facilitator, Kinesiology, Wellness Coach, Australian Bush Flower Essences, LEAP Facilitator, Trauma, Public Speaker, Cancer Ambassador, Blooming From Within, Traralgon, Victoria, Gippsland

Karen Humphries is a Kinesiology Practitioner, Health & Business Coach, self-confessed laughaholic, and now Wellness Advocate residing in Gippsland Victoria Australia. She loves being of service to the world with her humorous and positive approach to life, encouraging people to ‘choose to change and bloom from within.’